Outcome Scales Repository

From Wikipedia

Contents 1 Introduction 2 Region-specific scales 2.1 Cervical spine 2.2 Lumbar spine 2.3 Shoulder 2.4 Elbow 2.5 Forearm 2.6 Hand/wrist 2.7 Upper extremity as a whole 2.8 Pelvis 2.9 Hip 2.10 Knee 2.11 Foot and Ankle 3 Physical Disability 4 Comprehensive Functional Assessment 5 Activities of Daily Living (ADL) Instruments 6 Outpatient Functional Status Monitoring Instrument 7 Gastrointestinal system 7.1 Generic gastroenterologic instruments 7.2 Constipation 7.3 Inflammatory Bowel Disease 7.4 Haemorroids 8 Neurological Conditions 8.1 Stroke scales 8.2 Functional ability 8.3 Stroke 8.4 Headache/Migraine 8.5 Epilepsies 8.6 Neuropsychological Functioning 8.7 Cognitive Impairment in the Elderly 9 Quality of Life

Introduction

The Outcome Scale Repository is a bibliographic list of over 200 scales for outcomes assessment, their original bibliographic references, and subsequent references where the scale was validated. A full-text version of the scale is provided when the journal and author have granted CESO with permission for public distribution. References for each of the listed scales were obtained from the original books and publications below. Researchers are referred to these references for a detailed assessment of the psychometric properties of each of the scales:

• Bowling A. Measuring Disease A Review of Disease-specific Quality of Life Measurement Scales. Open University Press, 2001

• Bowling A. Measuring Health: A Review of Quality of Life Measurement Scales. Open University Press; 2nd edition, 1997

• DeVellis R. Scale Development: Theory and Applications. Applied Social Research Methods, second edition, 2003

• Pietrobon R, Coeytaux RR, Carey TS, Richardson WJ, DeVellis RF. Standard scales for measurement of functional outcome for cervical pain or dysfunction: a systematic review. Spine. 2002 Mar 1;27(5):515-22. Review.

• Suk M, Hanson BP, Norvell DC, Helfet DL. Musculoskeletal outcomes measures and instruments -- 155 instruments evaluated and assessed. Thieme, 2005

• Streiner D, Norman G. Health Measurement Scales : A Practical Guide to Their Development and Use. Oxford Medical Publications, 2003

Region-specific scales

Cervical spine

• Copenhagen Neck Functional Disability Scale (Jordan, 1998) Scale content: The Chiropractic Resource Organization

• Northwick Park Neck Pain Questionnaire (Leak, 1994)

• Neck Disability Index (Vernon, 1991) - Scale content: The Chiropractic Resource Organization

• Neck Pain and Disability Scale (Wheeler, 1999)

Lumbar spine

• Roland Questionnaire (Roland, 1983)

• Maine-Seattle back questionnaire (Atlas, 2003)

• Oswestry Disability Index (Fairbank, 1980) - Scale content: The Chiropractic Resource Organization

Shoulder

• Oxford Shoulder Scale (Dawson, 1996)

• Shoulder Pain and Disability Index (SPADI) (Roach, 1991)

• American Shoulder and Elbow Surgeons Shoulder Index (King, 1999)

• Shoulder Rating Questionnaire (L´Insalata, 1997)

• Simple Shoulder Test (Matsen, 1993)

• University of California - Los Angeles Shoulder Scale (UCLA) (Elman, 1986)

• Wheelchair User´s Shoulder Pain Index (WUSPI) (Curtis, 1995)

• Flexilevel scale of shoulder function (FLEX-SF) (Cook, 2003)

• Herscovici shoulder scale (Herscovici, 1992)

• Rowe scale (Rowe, 1978)

• Shoulder-related disability questionnaire (Croft, 1994)

• Western Ontario Rotator Cuff (WORC) (Kirkley, 2003)

• Swanson shoulder score (Swanson, 1989)

• UCLA pain and function score (Ellman, 1986)

• Western Ontario Shoulder Instability Index (WOSI) (Kirkley, 1998)

• Shoulder disability questionnaire (van der Heidjden, 2000)

• Hospital for Special Surgery shoulder assessment (HSS) (Warren, 1982)

• Athletic shoulder outcome scoring system (Tibone, 1993)

• Functional assessment of the shoulder questionnaire (Constant, 1987)

• Disabilities of the Arm, Shoulder and Hand (DASH) (Hudak, 1996)

• Imatani shoulder score (Imatani, 1975)

• Neer shoulder score (Neer, 1970)

• Rotator cuff quality of life measure (RC-QOL) (Hollinshead, 2000)

• Shoulder instability questionnaire (Dawson, 1999)

• UCLA shoulder rating score (Amstutz, 1981)

• Upper extremity function scale (Pransky, 1997)

• Upper extremity functional limitation scale (Simonsick, 2001)

• Shoulder pain score (Winters, 1996)

• Simple shoulder test (SST) (Lippitt, 1993)

• Single Assessment Numeric Evaluation (SANE) (Williams, 1999)

• Subjective Shoulder Rating System (SSRS) (Kohn, 1997)

• Criteria for rating results of rotator cuff surgical repair (Wolfgang, 1974)

• Western Ontaria Osteoarthritis of the Shoulder Index (WOOS) (Lo, 2001)

Elbow

• American Shoulder and Elbow Surgeons´ Elbow Index (ASES-e) (King, 1999)

• Patient Rated Elbow Evaluation (PREE) (MacDermid, 2001)

• Assessment of Elbow function scale (King, 1999)

Forearm

Patient Rated Forearm Evaluation Questionnaire (PRFEQ) (Overend, 1999)

Hand/wrist

• Alderson McGall Hand Function Questionnaire (AMHFQ) (Alderson, 1999)

• Australian Canadian Osteoarthritis Hand Index (AUSCAN) (Bellamy, 2002)

• Brigham (Levine, 1993)

• Hand Function Sort (HFS) (Matheson, 2001)

• Michigan Hand Outcomes Questionnaire (MHQ) (Chung, 1998)

• Patient Rated Wrist Evaluation (MacDermid, 1996)

• Boston Carpal Tunnel Syndrome Questionnaire (BCTSQ) [Levine, 1993]

Upper extremity as a whole

• Capabilities of Upper Extremities Instrument (CUE) (Marino, 1998)

• Disabilities of the Arm, Shoulder and Hand (DASH) (Hudak, 2003 ) Scale content: http://www.dash.iwh.on.ca/

• Modified American Shoulder and Elbow Surgeons´ Shoulder Index (m-ASES) (Beaton, 1998)

• Prosthetic Upper Extremity Functional Index (PUFI) (Wright, 2001)

• Student Health-Related Role Functioning Questionnaire (SHRQ) (Katz, 2002)

• Upper Extremity Functional Scale (UEFS) (Pransky, 1997)

Pelvis

• Iowa pelvic score (Templeman, 1996)

• Majeed pelvic score (Majeed, 1989)

• Orlando pelvic outcome score (Cole, 1996)

Hip

• Rating scale for hip disabilities (Larson, 1963)

• Functional rating scale (Keene, 1982)

• Salvati Hip Score, also known as HSS hip score (Salvati, 1973)

• Lequesne scale for osteoarthritis of the hip and knee (Lequesne, 1987)

• Mobility score after hip fracture (Parker, 1993)

• AAOS hip and knee score (Johanson, 2004)

• Charnley hip score (Charley, 1972)

• Patient Specific Index hip rating scale (PASI) (Wright, 1994)

• Merle D'Aubigne-Postel hip score (D'Aubigne, 1954)

• Non-arthritic hip score (Christensen, 2003)

• Lower extremity measure (Jaglal, 2000)

• Perception about hip replacement questionnaire (Dawson, 1996)

• Thompson and Epstein score (Thompson, 1951)

• Total hip arthroplasty outcome evaluation (Liang, 1991)

• Functional recovery score (Zuckerman, 2000)

• Harris Hip Questionnaire (Harris, 1969)

• Lower Extremity Measure (LEM)

• Mayo hip score (Kavanagh, 1985)

• Hip disability and Osteoarthritis Outcome Score (HOOS) (Nilsdotter, 2003)

Knee

• Lysholm´s Knee Scale (Lysholm, 1982)

• Tegner Activity Level Scale (Tegner, 1985)

• Knee Injury and Osteoarthritis Outcome Score (KOOS) (Koos, 1998)

• Rheumatoid and Arthritis Outcome Score (RAOS) (Bremander, 2003) Scale content: http://www.koos.nu/

• AAOS hip and knee score

• American Knee Society score (AKS) (Insall, 1989)

• Hospital for Special Surgery knee scale (HSS) (Ranawat, 1976)

• AAOS sports knee scale

• ACL evaluation format (Lukianov, 1987)

• Activity rating scale for disorders of the knee (Marx, 2001)

• Hungerford scoring system (Hungerford, 1982)

• International Knee Documentation Committee scoring system (IKDC) (Irrgang, 2001)

• Iowa knee evaluation (Merchant, 1989)

• Bristol scale (Mackinnon, 1988)

• Knee functional assessment chart (no author, 1978)

• Cincinnati knee rating system (Noyes, 1983)

• Patellofemoral joint evaluation score (Fulkerson, 1990)

• Questionnaire on the perceptions of patients about total knee replacement (Dawson, 1998)

• Single Assessment Numeric Evaluation (SANE) (Williams, 2000)

• Western Ontario and McMaster OA index (WOMAC) (Bellamy, 1988)

• Patient-reported measure of function of the knee (Irrgang, 1998)

• Knee scoring scale (Kettelkamp, 1975)

• Anterior Knee Pain Scale (Kujala, 1993)

• Index of severity for osteoarthritis of the hip and knee (Lequesne, 1987)

• Lower extremity functional scale (LEFS) (Binkley, 1999)

• Neer knee score (Neer, 1967)

Foot and Ankle

• AAOS foot and ankle core score

• Clinical rating system for the ankle-hindfoot (Kitaoka, 1994)

• Ankle joint functional assessment tool (Rozzi, 1999)

• Ankle osteoarthritis score (Domsic, 1998)

• Calcaneal fracture assessment score (Crosby, 1996)

• Functional outcome assessment (Thordarson, 1996)

• Calcaneal fracture rational scoring system (Kerr, 1996)

• Ankle-rating scale (Kaikkonen, 1994)

• Foot and ankle outcome score (Roos, 2001)

• Foot function index (Budiman-Mak, 1991)

• Visual analog scale for calcaneal fracture (Hildebrand, 1996)

• Foot health status questionnaire (Bennett, 1998)

• Painful foot rating score (Sanders, 1993)

• Mazur ankle score (Manzur, 1979)

• Scoring scale for symptom evaluation after ankle fracture (Olerud, 1984)

• Freiburg Ankle score (Lahm, 1998)

• Iowa ankle score (Merchant, 1989)

• Ankle function score (KAFS) (Karlson, 1991)

• Karlstrom Olerud ankle score (Karlstrom, 1977)

• Ankle score (Liu)

• Foot and ankle grading system (Good, 1975)

• Sports ankle rating system (Williams, 2005)

• Ankle score (St. Pierre, 1982)

• Oral analogue scale for calcaneal fractures (Morin, 1998)

• Scoring system for calcaneal fracture (Paley, 1993)

Physical Disability

• Aberdeen Back Pain Scale (Rutta, 1994)

• Western Ontario Shoulder Instability index (WOSI) (Kirkley, 1998)

• Western Ontario Rotator Cuff index (WORC) (Kirkley, 2003)

• Fibromyalgia Impact Questionnaire (FIQ) (Burckhardt, 1991)

• Patient-Rated Wrist Evaluation (PRWE) (MacDermid, 1998)

• Short osteoporosis quality of life questionnaire (Badia, 2000)

• Western Ontario Osteoarthritis of the Shoulder index (WOOS) (Lo, 2001)

• Osteoporosis Assessment Questionnaire (OPAQ) (Randell, 1998)

• Quality of Life Questionnaire of the European Foundation for Osteoporosis (QUALEFFO) (Lips, 1996) -

• Scale content: International Osteoporosis Foundation Quality of Life - Rheumatoid Arthritis scale (QOL-RA) (Danao, 2001)

• Pediatric Quality of Life inventory (PedsQL) (Varni, 1999)

• Patient-specific index (Wright, 1997)

• Functional Status Index (FSI) (Deniston,1980)

• Western Ontario and McMaster Universities Arthritis Index (WOMAC) (Bellamy, 1988)

• Office of Population Censuses and Surveys (OPCS) Disability Scale (Martin, 1988 ) - Psychometric properties: (Hornquist, 1993)

• Rheumatoid Arthritis Impac on the Homemaker Questionnaire

• MACTAR (McMaster-Toronto Arthritis) Patient Function Preference Questionnaire (Tugwell, 1987)

• Hornquist´s Quality of Life Status and Change Scale

• Schedule for the Evaluation of Individual Quality of Life (SEIQoL)

• Health Outcomes Institute TyPE (HOI-TyPE) - Joint Conditions

• Rand Joint Problems Battery

• Arthritis Helplessness Scale (AHI)

• EURIDISS (European Research on Incapacitating Diseases and Social Support (Suurmeijer, 1995)

• Stanford Arthritis Center Health Assessment Questionnaire (HAQ) (Fries, 1980) - Psychometric properties: (Bruce, 2003 ) full-text

• Arthritis Impact Measurement Scales (AIMS) (Meenan, 1980 ), later revised to AIMS2 (Meenan, 1990 )

Comprehensive Functional Assessment

• Edinburgh Rehabilitation Status Scale (ERSS) (Affleck, 1988)

• Functional Independence Measure (FIM) (Granger 1993)

• Functional Life Scale (FLS) (LORS, LORS-II, LORS-IIB, LADS, LORS-III) (Sarno, 1973)

• Patient Evaluation Conference System (PECS) (Harvey, 1981)

• PULSES Profile (Moskowitz , 1985)

• Rankin Scale

Activities of Daily Living (ADL) Instruments

• Barthel Index (MAHONEY, 1965)

• Katz Index of ADL (KATZ , 1963)

• Kenny Self-Care Evaluation (Schoening,1965)

• Klein-Bell ADL Scale (Klein, 1982)

• Time Care Profile (Halstead, 1975)

• Scale for Instrumental Activities of Daily Living (Lawton, 1969)

Outpatient Functional Status Monitoring Instrument

• Medical Rehabilitation Follow Along (MFRA) (Granger, 1995)

Gastrointestinal system

Generic gastroenterologic instruments

• Gastrointestinal Quality of Life Index (GIQLI) (Eypasch, 1995)

• Gastrointestinal Symptom Rating Scale-interviewer administered (GSRS-interv)

• Gastrointestinal Symptom Rating Scale-self administered (GSRS-self) (Pare, 2003)

Constipation

• Constipation Assessment Scale (CAS) (McMillan , 1989)

Inflammatory Bowel Disease

• Inflammatory Bowel Disease Quality of Life questionnaire (IBDQOL) (Casellas, 2004)

• Rating Form of IBD Patient Concerns (RFIPC)

• Short Inflammatory Bowel Disease Questionnaire (SIBDQ) (Vlachonikolis, 2003)

• Inflammatory Bowel Disease Questionnaire (IBIQ) (Guyatt, 1989)

Haemorroids

• Rand Surgical Conditions Battery: Haemorroids - Rubenstein RS, Beck S, Lohr KN. Conceptualization and Measurement of Health forAdults.Vol.15. Surgical Conditions. Santa Monica, CA: RandCorporation, 1983

Neurological Conditions

Stroke scales

• Rankin Handicap Scale (Rankin, 1957 )

• National Institute of Health Stroke Scale (Brott, 1989 )

• Canadian Neurological Scale (Cote, 1986) - Psychometric properties: (Folstein, 1975)

• Hemispheric Stroke Scale (Adams, 1987 )

Functional ability

• Barthel Index (Mahoney, 1965 )

• Nottingham Extended Activities of Daily Living Questionnaire (Nouri, 1987 )

• Frenchay Activities Index (Holbrook, 1983 )

• Rivermead Mobility Index (Collen, 1991 )

Stroke

• Health Outcomes Institute TyPE Scales (HOI-TyPE) - Acute Stroke

Headache/Migraine

• Migraine-Specific Quality of Life Questionnaire (MSQ) (Santanello, 1995)

• Migraine Disability Assessment (MIDAS) (Iigaya, 2003)

• Headache Needs Assessment questionnaire (HANA) (Cramer, 2001)

Epilepsies

• Seizure Severity Scale (Carpay, 1997)

• Washington Psychosocial Inventory (Dodrill, 1980)

• Epilepsy Surgery Inventory (Selai, 2000)

• Katz Adjustment Scales (revised for use with Epilepsy)

Neuropsychological Functioning

• Trail Making Test (Reitan, 2004)

• Wechsler Memory Scale (WMS) (Baker, 2003)

• Wechsler Adult Intelligence Scale (WAIS) (Greve, 2003)

Cognitive Impairment in the Elderly

• Abbreviated Mental Test Score (AMTS) (Burleigh, 2002)

• Mini-Mental State Examination (MMSE)

• Mental Status Questionnaire (MSQ) (KAHN, 1960)

• Older Americans´ Resources and Services Schedule (ARS) mental health measures

• Brief Cognitive Functioning Scale (SIP subscale)

• Geriatric Mental State (GMS) (Copeland, 2002)

• Comprehensive Asssessment and Referral Evaluation (CARE)

Quality of Life

• Quality of Life Scale (QLS) (Whiteneck, 1994)

• Lehman Quality of Life Interview

• Lancashire Quality of Life Profile (Nieuwenhuizen, 2001)

• SmithKline Beecham Quality of Life Scale (SBQOL) (Stoker, 1992)

• Oregon Quality of Life Self-Report Questionnaire and Semi-Structured Interview Rating Version [ ]

• Quality of Life Index for Mental Health (QLI-MH) (Becker, 1993)

• Index of Health Related Quality of Life (Ford. 2001)

• Piloting of the Health of the Nation Outcome Scales

• Team for the Assessment of Psychiatric Services (TAPS) Measures